These books were co-written with my daughter Serena Silvestro and illustrated by childhood friend and artist, Mary Gilmore. They are told through the voice of Lilly, a 7-year-old girl with cystic fibrosis.
When Serena was first diagnosed with cystic fibrosis in 2006, I could not find a book that approached this condition from the social-emotional-spiritual perspective, and so she and I decided to do one together. Writing and working on the books helped us cope, and grapple with the complexity of her condition. We also wanted to help other kids and families, too.
These books represent the 2nd edition of these titles and reflect our evolving understanding of this complex and life-shortening condition.